Help me raise funds to beat brain cancer!
I am participating in the 2098 Seattle Brain Cancer Walk to support research to beat brain cancer. I am a survivor and we have all lost family and friends to cancer.
I hope that you can join me this year by donating or walking with me. Every person who walks, donates or volunteers is helping make a positive impact.
In my personal cancer journey, I have been very fortunate, with a strong, amazing wife, limitless support from family and friends, a generous workplace, and the best doctors in the oncology and neuroscience business. Currently I am undergoing chemotherapy to stop my tumor from growing. There is no cure and few effective treatments available. I am a father and I want to be there for my family for a long, long time.
My brain tumor story
On Monday, January 14, 2013, I had a grand mal seizure at work. That's when I learned that I had a lemon-sized mass in my left temporal lobe.
Since then, it's been an up and down roller coaster that has changed my life.
The first biopsy in January 2013 at Swedish Cherry Hill indicated that my tumor was slow growing and has been there for years (a Grade II Astrocytoma). At that point the doctors recommended observation. I could potentially live for years without any growth.
I started an every-two-months MRI schedule to monitor the tumor. The tumor continued to cause seizures and I began to take anti-seizure medication.
I tried several different types of anti-seizure medication as some of the combinations had severe side effects, and they didn't stop the seizures. Eventually I found a good drug combo, but still struggled with seizures every few days.
The July MRI showed significant growth in the tumor, 4 mm since January, and treatment was recommended. A new neurosurgeon, Dr. Charles Cobbs, had recently joined Swedish and felt that surgery was a viable option. The benefits of surgery, such as removing a large portion of the tumor, increasing the median survivability rate, and reducing my seizures, were clear. So were the risks -- "It's not like getting a mole removed, it's brain surgery" -- such as impacts to my speech and weakness and paralysis of my right side. The risks were small percentage-wise.
My surgery on August 7, 2013 removed 90 percent of the tumor! This was great news. The troubling news was that the pathology found pockets of Grade III (anaplastic astrocytoma), considered to be a malignant tumor. What then followed was six weeks of radiation and chemotherapy, and then six months of chemotherapy. I emerged from treatment in 2014 and my tumor was stable until April 2018. I have tried several chemo drugs and now I am trying another with the hope it slows down the tumor
In the meantime, as I have heard from many other cancer patients, my perspective on life is very different. Now I focus on living in the moment, enjoying the blessings I have, and trying to give back to others. I’ve changed my diet, how I live my life and look at my career, and focused on spiritual growth. Now I am a stay-at-home dad with my amazing daughter Grace and son William .
I continue to pray that we can find effective treatments and a cure.
You can join me at this year's Walk by clicking on the JOIN MY TEAM button.
You can also help by sponsoring me. It's easy to make a gift by clicking DONATE NOW